What a surreal week it has been.
We went to the allergist on Friday, and the squeaker suffered through a “scratch test,” a skin test to see if he reacted to different allergens. We were told that based on this test, he is allergic not only to peanuts and soy, but also to wheat, milk, eggs, sesame seed, shellfish, and possibly tree nuts. We were given pages of ingredients to avoid and told that the squeaker should not eat any foods with any of these ingredients.
We were stunned and confused.
Then we had to take the squeaker to have blood drawn, because the “scratch test” is followed with the RAST test, which associates some sort of numeric value with the allergy. Watching the nurse draw blood from the squeaker’s thin little arm was awful.
He’d also tested slightly positive for an allergy to dogs, which didn’t surprise us since we have seen him cough and sneeze after being around dogs.
Anyway, after Friday, the more we thought about this whole thing, the stranger it sounded. The allergist seemed very fixated on his eczema. But we’re more concerned about his chronic cough, which only happens every other day (or night), but disrupts our lives significantly. We’d like the eczema to go away, but the squeaker seems able to live with it.
And I know that for me, if the alternative was subsisting on rice cakes, I’d rather just deal with a little eczema. So while our initial reaction was to run to a high-end grocery store to buy lots of rice flour and other strange, not-very-tasty products, we’re re-thinking that.
Then today, we get a call from the allergist about the blood test results. She said they confirmed the peanut allergy, but that the test was negative for soy. (Um…we are 100% certain the kid threw up after eating soy protein.) And he is mildly allergic to wheat and eggs, and slightly more allergic to milk. She recommended completely avoiding the former for 9 months and the latter for a year.
The squeaker is only 23 pounds at two and a half years old. Other kids his age tower over him. And we’re supposed to eliminate most of the foods he eats so that he doesn’t suffer from relatively mild eczema? It just sounds crazy.
I have a lot of questions about this whole thing. Is the scratch test reliable? (I understand it can result in a lot of false positives.) Is the blood test reliable? (I’ve heard it can result in false negatives.) More importantly, what’s the real purpose of complete avoidance of these foods? Is it to avoid a more severe reaction? (According to the allergist, an anaphylactic reaction to wheat or eggs is theoretically possible for the squeaker.) Or is it to encourage him to outgrow the allergies? I’ve read that complete avoidance is recommended in order to encourage outgrowing an allergy, but it’s not clear what the scientific support for this is, or how it works. Does complete avoidance mean the kid outgrows the allergy faster? Or that it’s more likely that the kid will outgrow the allergy? Is it a spectrum – complete avoidance is best, but some avoidance is good – or is it all-or- nothing?
We can’t seem to get the allergist to see the whole picture. The squeaker is so tiny. Getting him to eat anything is tough enough without limiting his options severely. I find it hard to believe that the benefits of complete avoidance of all these foods would outweigh the nutritional sacrifices involved.
So we’re going to ignore the allergist, and follow our own instincts. No peanuts, of course. No soy, because we saw the squeaker’s reaction. We’ll take some care not to overload him with the other stuff, but we’re not going to radically change his diet.
To make the whole thing worse, the squeaker has been really sick for the last few days. Because we think it’s likely that his cough is associated with an allergy to dogs, we’ve been pulling up the carpeting, which is presumably covered with dog dander since the former owners of our house had two dogs. Though we had the squeaker outside as much as possible, we stirred up a lot of dust and dander, and when he began wheezing yesterday, we took him to the pediatrician. The doctor said he has asthma, which sounds scary to me, but which seems to be fairly mild and easily controlled. We were given some treatments, and we are hoping that using those and getting the carpeting out of the house will reduce or eliminate his cough.
So that’s where we are. I feel better for writing it all out. And since there is so much more to the squeaker than these allergies, I’m done blogging about them. Who wants to read such boring stuff? Some parents make their kid’s health problems their life. I don’t plan to do so, myself. The squeaker is too funny and clever and squeezable.